Life With Neurofibromatosis

A personal account of what it is like to live with NF, and how it has and continues to mold me.

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Tuesday, December 31, 2024

Good-bye 2024

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 It is the last day of 2024, and I can honestly say that I am happy to have had a 'boring' year. After having two difficult years, I...
Wednesday, August 7, 2024

Social Rejection

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 This week, I have felt an overwhelming amount of sorrow. I cannot identify an exact trigger that has caused me to feel this way, but I cann...
Thursday, July 4, 2024

The Eye Test

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 I've been failing my self-administered eye test . A few weeks back, my friend Chantal took me out for my birthday. Our first stop was C...
Wednesday, April 17, 2024

This is My Brave: I Dare You

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 On Friday, April 5th, I participated in USF's This is My Brave College experience. I stood on stage, vulnerable and naked ( figurativel...
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Thursday, January 4, 2024

Social Media-ing with NF

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 I have been contemplating sharing this experience because I felt ashamed for being such a fool and was angry at myself because I fell victi...
Thursday, November 16, 2023

The Culprit is Gone

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One month post-up, and I feel amazing. Recovery from this surgery has been so different when compared to my traumatizing previous surgery. W...
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Friday, November 3, 2023

Removing the Culprit

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 On October 16th, I walked into Moffitt for surgery number 24. The purpose of the surgery was to remove the titanium mesh. It's ironic h...
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