Quick Overview of My NF

The purpose of my blog is to share my life story, I write about my experiences and how each and everyone has shaped me to be the woman that I am today. What I have yet to write about in great detail is about my NF in itself and how it has not only affected me but also my family.

~ My mother has NF 1, her's is a spontaneous mutation 

~ One of two of my brothers also has NF1 

~ I was diagnosed at birth

~ I had my first surgery when I was eight days old

~ I lost vision in my right eye at around the age of two

~ I have had several reconstructive surgeries on the right side of my skull in an attempt to correct a bone abnormality.

~ Although, no evidence was ever found that it was linked to NF, I had two episodes of grand mal seizures when I was eight.

~ At the age of ten, I had surgery to remove my right eye because my left eye was being compromised. 

~ I have a very light form of dyslexia.

~ Overall I have had 21 surgeries.

~ Thus far, most of my fibromas are about the size of a pinhead and are mostly on my back. 

~ I tend to get dizzy and get headaches with vigorous exercises such as jumping-Jacks, Zumba, and gymnastics.

~ My last surgery was when I was 18 years old.

~ I do not know if and when I will have another. 

~ To be continued.... =)