~ My mother has NF 1, her's is a spontaneous mutation
~ One of two of my brothers also has NF1
~ I was diagnosed at birth
~ I had my first surgery when I was eight days old
~ I lost vision on my right eye at around the age of two
~ I have had several reconstructive surgeries on the right side of my skull in an attempt to correct a bone abnormality.
~ Although, no evidence was ever found that it was linked to NF, I had two episodes of grand mal seizures when I was eight.
~ At the age of ten I had surgery to remove my right eye because my left eye was being compromised.
~ I have a very light form of dyslexia.
~ Overall I have had 19 surgeries.
~ Thus far, most of my fibromas are about the size of a pin head and are mostly on my back.
~ I tend to get dizzy and get headaches with vigorous exercises such as jumping-Jacks, Zumba, and gymnastics.
~ My last surgery was when I was 18 years old.
~ I do not know if and when I will have another.
~ To be continued.... =)